Always been active; sporty and fit, super energetic and happy, not seen a doctor for decades. I was arrogant enough to believe; HeyI'm fine, everything's cool, nothing will ever get me I'm far too fit. Then, out of the blue came the wakeup call. What makes it worse, it's such a rare disease not even science knows anything about. Hence - no cure in sight. Cool me, huh? I just wish others don't live my past arrogant way!